Posts

Mast cell Disorder Child's face rash

Mast Cell Activation Disorder – “Making Friends?”

Mast Cell Activation Disorder   – Update

I am just feeling the effects of my mast cells going beserk. Under arm sweating, fingers tingling, scalp “lifting” mouth swollen, ears burning, throat closing face going pink and “crawling”, brain fog and anxiety and that’s just my head! Wow! Oops now I feel my skin lift, go red and itch like crazy and I can only be “glad” that this time, at least it is not my throat closing so that I am choking.  A small mercy.

Welcome to my world.

 

Mast Cell Activation Disorder

is an immunological condition in which mast cells inappropriately and excessively release chemical mediators, resulting in a range of chronic symptoms, sometimes including anaphylaxis or near-anaphylaxis attacks.  Here is a photo – well so I think as I didn’t take it ( LOL!). Here is also a link to some information on Wikipedia.   

Mast Cell Activation disorder

 

My Condition Update

I used to live with this on a daily basis so I am very thankful that I do not have these “attacks ” very often now. I do know that a lot of you good people out there have to deal with this everyday and I feel for you.

If you read my About Su page you will see that I was diagnosed with Histamine Intolerance and then Mast Cell Activation Disorder  in 2009 confirmed later by my  doctor. I also see a brilliant skin specialist regularly to check my condition.

I realised in 2009  that I had always had times where I had unexplained symptoms. Now since 2009,  I have become expert in my symptoms and managing them – well , most of the time anyway! But it still sucks! I do feel for anyone of you who goes through it on a a daily basis.

I now feel so much better and I am now living well again and travelling extensively. I have so much energy and I run and exercise on a daily basis.  My hair is so much thicker, my body works well and my skin is great.  It has taken time and effort but it has been worth it.

Cautiously I say now that I am “lucky” that my condition came to light and that I was given this opportunity to sort my health out in such a positive way. You might say I have made friends with my condition and I am, by and large, at peace with it.  Never ever thought I would say this but it has helped me (forced me) to get really well!

Thank you to so many people who are continually writing in about my diet. I feel privileged that you continue to come and ask while I have not been present on my website.

Some of you have asked to know how I did it I promise I will share it all soon. I followed a very strict diet under the guidance of Dr Fuhrman and I take no tablets whatsoever.  Yes,  No Antihistamines.

My very dear friend ,Yasmina, who was diagnosed at the same time and who set off with me on the path to get to grips with our condition decided to research it big time.  . Please See her website for further info.   Sadly Yasmina passed away recently from cancer but her work is her legacy.

I wish you well on your health journey.

Mast cell Activation Disorder

Su

 

 

 

 

 

 

 

How Not To Die… What we didn’t know until now!

How not to Die? Hmm intriguing title! Latest on Immortality? With the book beside me as I type I have already had someone say that we all die eventually and ask so what is this all about?  This is Dr Greger’s excellent life changing new book and it packs a big punch right up front by informing us that there may be no such thing as dying from old age. Apparently current research shows that we actually die from diseases rather than old age! Think about it! Of course, the book is really about how not to die prematurely from diseases and how to live as healthily as possible. This is my dream book! I was very lucky to get an advanced copy. Mine is on order.

Read more

Research into food choices causing dementia. Food for thought?

Dementia – Food for Thought?

Given that both my mother and my husband have quite advanced dementia, I have had to think and research about the possible causes of Alzheimer’s disease and the other kinds of dementia, and my research has led me back to a whole-food plant-based diet as being the best way to prevent brain decline in later years. Literally food for thought. By way of background my husband had a minor stroke in 2001, followed, in 2002. by a massive stroke from which I resuscitated him. Read more

Eating a salad a day is easy ....

My daily salad! ….

Give me my daily salad anytime! Wow! Never ever thought I would love salad! Growing up, I didn’t like my greens but then when I was a little girl, salad consisted of lettuce, tomato and cucumber with sugar sprinted over the lot! Yuk! I used to think that salad was a punishment food! Cabbage tended to boiled to death in salty water and then served smothered in butter. I feel a bit sick when I remember this now. Small wonder then that I didn’t make salad/ green veggies my first choice of foods later in life.

Read more

Wild Food Cafe and The Reluctant Raw Foodist

Wonderful Wild Food Café and excellent course….

Wild Food Café  in colourful Neal’s Yard, Covent Garden, London, is my very favourite place to eat when I am in town. Go into Neal’s Yard and look up! Wild Food Café is above your head on the first floor.

Wild Food Café,  the much loved creation of Joel and Aiste,  is a raw-centric, vegan / vegetarian eatery where magic food is created every day.

Read more

Super Healthy Supper Salad with The Reluctant Raw Foodist

Supper Salad Recipe

Typical supper salad recipe for me. This is what I ate last night so it is hot news. Well, except that of course it was raw! LOL! Making it took me about 5 minutes if that.

Read more

Chia Dessert with The Reluctant Raw Foodist

Chia Dessert Recipe

Thought I would make a chia dessert, this evening. My sweet tooth got the better of me. 🙂

This one contained raw carob which is something I love. It is sweet and chocolatey without bringing on my sometimes adverse histamine reaction to chocolate – NO sudden outbreak of spots! Hooray!.

Read more

Fairport Convention - annual festival at Cropredy

Eating Vegan at the Fairport Convention Festival…

Fairport Convention are one of my favourite bands. I love watching them perform live and have seen them 3 times this year! LOL. I am a groupie!!! I loved every minute of the Cropredy Folk Rock Festival 2015 and didn’t want to come home!  I used to front a rock band, many years ago, and also I sang with a folk duo in my early teens. As soon as I see Fairport Convention  perform I am right back there, singing away. My guitar is definitely coming back out of the attic! Not sure why I ever put it away! Read more

At Cropredy Folk Rock Festival….

Audience at Cropredy Folk Rock Festival 600I am currently at the Fairport Conventions’s Cropedy Folk Rock Festival 2015 – a 3 day event.  Enjoying the fabulous  music, the wonderful people and the selection of food! Cropredy Folk Rock Festival is held in a little village called Cropredy near Banbury, Oxfordshire, UK, hence the name, and is the annual event of one of my very favourite bands, Fairport Convention.

Read more